TRANSITION SUPPORT SERVICE
Information for parents and carers of young people with IBD transitioning from paediatric to adult health services.
“A purposeful, planned process that addresses the medical, psychosocial and educational/vocational needs of adolescents and young adults with chronic physical and medical conditions as they move from child-centred to adult-oriented healthcare systems” Society of Adolescent Medicine 2003
Adolescent Transition is an important process for you as a parent/carer. You will be encouraging your young person to look after their own IBD healthcare to the best of their ability and become if able, more independent. Your involvement in this process is important as it will help you to support them during this time of change. We have developed some information on a range of topics related to transition more generally which are also available at IBDTransition.org.au, designed to help support you and your son/daughter.
AIMS OF TRANSITION
WHAT DOES TRANSITION MEAN FOR YOU?
Transition is an important process for you. Your role as parent or carer of a young person who is progressing into adulthood may be evolving and changing during this period. This process will provide you with practical assistance and guidance to help prepare you and your son/daughter for the move to adult health care. Discussions may include:
There are 4 general phases for an effective transition process.
Introductory/Planning Phase (12-15 years approximately)
You and your son/daughter will be introduced to the concept of transition, starting the information exchange, and assessing their knowledge of their medical condition and how to manage it. This is where you may be assisting your son/daughter to become more independent if appropriate.
Preparation Phase (15- 18 years approximately)
You and your son/daughter will develop a transition plan and be assigned a transition lead (person who will help to manage the transition process). During this phase, confidentiality, rights and self-advocacy will be explored and you and your son/daughter may:
Transfer Phase (18 – 19 years)
Your son/daughter’s readiness to transfer will be assessed and all relevant information will be sent to your son/daughter’s new adult care team/s either via a letter, by phone or face-to-face. You will receive a copy of this letter too. Your son/daughter may have their last visit with their paediatric team/s and you will meet and start having appointments at the new adult IBD health service/s.
Evaluation Phase (6 – 18 months following transfer)
You and your son/daughter have the opportunity to provide us with feedback about the transition and transfer process and your experience. This helps us to improve the process.